Patient involvement with research design
Have a look at some of the patient partner groups (PPGs) that we have held below
The most important way that patients help with our research is by reporting about their experiences living with the condition, by completing TONiC questionnaire packs. The second invaluable contribution is by taking part in one of our events to shape future research. Information on how to join these is in our Patient Partner Group (PPG) meetings or newsletters.
Most of our Patient Partner Groups are attended online, if you would like to join online after being sent an invite, please find instructions on how to use Microsoft Teams here
Open to recruitment for MS and MND
Patient Partner Group (PPG) with Professor Young, The Walton Centre:
Co production event asking participants to help design a sub-study looking at the impact of supported exercise on MS outcomes
Dr Sophie Jones and the TONiC team will interview TONiC patients who agreed to a research lumbar puncture
Closed to new recruitment
Dr Tara Kidd, Liverpool John Moores University:
Dr Ben Buckley, Liverpool Centre for Cardiovascular Science, Liverpool John Moores University, University of Liverpool, & Liverpool Heart & Chest Hospital:
Dr Sharmilee Gnanapavan, St Barts London:
Dr Tara Kidd, Liverpool John Moores University:
Co production event asking participants what an MS specific sleep app may include:
Dr Tara Kidd, Liverpool John Moores University:
Dr Tara Kidd, Liverpool John Moores University:
Dr Anna Auer-Fowler, University of Liverpool:
