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Phase 4 - Longitudinal Study for people with MS
In Phase 4, those participants who returned a Phase 3 questionnaire pack are invited to consent to receive further packs over time.
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After you consent to Phase 4, you would receive a questionnaire pack in the post, which is almost the same as the one you did for Phase 3, along with a reply paid envelope.
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In MS we would contact you by phone or email once per year to see if you would like to do another pack, before posting out a new one with an signed address envelope.
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Every single extra pack we receive is worthwhile, so please contact us to do Phase 4 if you would do another pack at home.
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Doing three packs altogether (the initial Phase 3 and 2 more Phase 4 packs) makes you a trilogy.
In the TONiC analyses, we are measuring a number of factors which influence your quality of life, and assessing how they change over time.
A TONiC trilogy is a person in Phase 4 of the TONiC study who has completed and returned at least three questionnaire packs overall. They are particularly appreciated as their data is very valuable.
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Read on to discover why...
In the first graph the green line on the bottom shows time and the blue arrow shows increasing fatigue. You have done two fatigue measures, #1 and #2.
We draw in a trajectory and record this as increasing fatigue.
But trilogy data shows that fatigue increased, then decreased.
The red line shows how misleading two data points would have been. And something important happened about the time shown by the solid red arrow, which seems to have helped your fatigue. We would not know to look for this if we thought the trajectory was the red line.
Get started...
If you wish to participate in these future stages, or want to find out if you are eligible to do so, please refer to the MS map below to check whether your neurological team are named as one of the centres involved in TONiC.
If so, please visit our list of TONiC MS sites and contact the name at your site for more information.