What is it?

TONiC are leading a Delphi process, commissioned by the UK MND Research Institute (https://ukmndri.org) to examine the opinions of UK clinicians and researchers about Patient Reported Outcome Measures (PROMs) in MND. 

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Who is eligible?

It is important to have the views of as many clinical staff as possible - doctors, nurses, OTs, palliative care, physios, psychologists, social workers, SLT, etc.​

 

How?

The Delphi will be done using Microsoft forms, on a computer, tablet or smartphone which will take about 10 minutes. ​

 

The Delphi will show you a number of clinical topics, e.g. spasticity, that can be measured using PROMs and ask you whether measuring them is essential, desirable or unnecessary. We will look at different clinical scenarios.  

 

You can assume that a high quality, accurate PROM will be available, but there is no point us doing the work to ensure that for topics which clinicians consider unnecessary to measure.​

 

What's included?

We will ask for some details about you, for example your professional background and level of experience, as we wish to see if those influence answers. 

 

We will feed back results to everyone, but the pooled responses will remain anonymous.

 

Why is this being done?

The data will be used to develop a UK core set of PROMs for MND, focused on those which professionals, such as you, think are important.